Public event: Celebrating Euan's Legacy

Euan MacDonald MBE, who lived with MND for over 20 years, died in 2024. The Centre that Euan founded, with his businessman father Donald MacDonald CBE, continues to flourish and brings together >250 MND researchers across Scotland.

We are delighted to host a public session to honour and build upon Euan's legacy, showcasing Euan's many achievements.

Everyone is welcome at this friendly event where there will be a chance to hear about MND research as well as Euan's other achievements, chat to researchers and ask questions, and enjoy refreshments. You're welcome to attend the whole afternoon if you can, or instead choose just the talks that you are most interested in.

For those not able to attend in person, the event will be recorded, and the recording made freely available on our website after the event (no need to register). Please email us on EMC_admin@ed.ac.uk if you'd like to be sent the link to the recording when it's available.

Programme

Download programme booklet (printed booklets will be available at the event)

14.00 - Arrivals and Introduction

14.20 - Euan's Guide: award-winning disabled access charity, founded by Euan with his sister Kiki. Speakers: Kiki MacDonald (Co-Founder), Joe Logue (Community Manager) and Antonia Lee-Bapty (CEO)

14.40 - SpeakUnique: digital technology speech technology company, spin out from a research project initiated by Euan. Speakers: Olivia Szczerbakiewicz (Customer Support & Experience Executive) and Oliver Watts (Chief Technology Officer)

15.00 - MND research projects: hear about cutting-edge research direct from early-career researchers

15.20 - break, and browse information stands

16.00 - public lecture on MND research by Prof Siddharthan Chandran and Prof Suvankar Pal and Mr Bruce Virgo

17.00 - reception and another chance to browse information stands

18.30 - close

Cost

The cost is £20 for attendance at the 'Celebrating Euan's Legacy' public session plus reception.

A 100% discount code is available to enable free attendance for:

• members of the Euan MacDonald Centre and invited guests (including donors and fundraisers)
• people living with MND and their families/carers

Please contact us on EMC_Admin@ed.ac.uk to obtain the code. The code should be entered at the Eventbrite checkout.

Registration

Registration is essential. Please register on Eventbrite at

https://tribute-euan-macdonald-symposium-2025.eventbrite.co.uk

and choose "Euan's Legacy public session" at the checkout.

Registration will close on Monday 22nd September at 9am. Full refunds are available for cancelled places until this time, but refunds cannot be offered after this date as numbers will have been confirmed with the venue.

Venue, accessibility, parking and travel

The John MacIntyre Centre is on the University's Pollock Estate, approximately 30 minutes from Edinburgh Waverley train station by bus or on foot.

There is some free parking available on the estate on a first-come-first-served basis, but as this is very limited we recommend using public transport.

View a full accessibility and travel guide on Accessable.co.uk (external website)

Downloadable PDFs:

• transport information
• estate map

At the venue there will be rooms available for:

• Baggage storage
• Breakout rooms x2 for informal discussions/calls
• Prayer room
• Quiet room

Academic Symposium

This public event is part of the 1.5-day "Tribute to Euan MacDonald" academic symposium, featuring academic talks on MND research from high-profile researchers in the UK and beyond.

If you are looking for that instead, click here for further information on the academic symposium.

Privacy Statement

Information about you: how we use it and with whom we share it

We will use your personal data to allow us to process your registration, communicate with you and obtain your feedback about the event. We are processing the information about you for these purposes because by registering for the conference, you are entering into a contractual agreement for us to do so.

In order to facilitate online booking for this event, we are using Eventbrite - a third party service which is not operated by the University of Edinburgh. Details of Eventbrite’s privacy policy can be found at: www.eventbrite.co.uk/help/en-gb/articles/460838/eventbrite-privacy-policy

If you wish to attend this event, but do not wish to use Eventbrite, please email us at EMC_Admin@ed.ac.uk.

If you have given us your permission, we will share your name, affiliation and contact details with the other participants in the delegate list. We will not share information about you with any other third party.

After the event, we will send you a survey as it is our legitimate interest to help us improve any future events we organise.

We will hold the personal data you provided us for 12 months. Financial data such as a payment record will be held for 7 years, but we will ensure that all information that can identify you directly is removed after 12 months.

We do not use profiling or automated decision-making processes.

If you have any questions, please contact EMC_Admin@ed.ac.uk.

This Privacy Statement is continued at: Continued privacy notice | Data Protection

Photography and Videography notice

Images and videos from this event will be used by the University of Edinburgh, including the Euan MacDonald Centre for MND Research, and our symposium partners Euan's Guide and SpeakUnique, to promote our activities to current and prospective staff, students, funders, stakeholders and partners. This will be used in our printed publications and digital channels, including websites and social media.

We will use this on the basis of our legitimate business interest to record and promote our work. We will inform you that we will be capturing and using your image.

The University uses external partners to communicate and promote our activities on the University’s behalf. Therefore, your personal information/image may be shared with partner agencies involved in the promotion the University of Edinburgh. This includes on third party platforms including social media, Eventbrite and Dotdigital.

Where we use your image online this will inevitably be subject to international data transfer and, in using third party platforms, we may also share your personal information to agencies which operate outside of the UK.

All personal information/images that we collect is held securely on the University’s servers and treated as confidential.