A woman taking a breathing test

How can I help the research?

How can I help the research?

There are many ways that people with MND and the public can help our research.

For people with MND and their families/carers

Sign up for a research project

We need you! People with MND in Scotland, and occasionally their carers/families too, can participate in our clinical research studies that aim to understand the causes and effects of MND.

We maintain, with the charity MND Scotland, a national register of everyone with MND in Scotland called CARE-MND. The register captures demographic (e.g., gender, location) and clinical data. Even gathering simple statistics such as age and first symptom can be enormously powerful in sufficient numbers. But our register is also there to ensure that there is equality of world-class care and access to research, for everyone with MND from Glasgow to Orkney.

Donate a sample

Biological samples from people with MND are invaluable to research. Through CARE-MND, people with MND in Scotland can donate a sample of blood or saliva if they wish. With their consent, this can be used to find out more about the genes that are involved in MND.

Some people might even consider donating their brain when they die, to provide scientists with an invaluable resource for future research.

For people with MND and the public

Donate your voice

Speak:Unique, the Voicebank Research Project, aims to create personalised digital voices for communication aids, simply and efficiently. It aims to enable people who speak using a voice synthesiser to sound like themselves again. We are currently recruiting members of the public to be healthy ‘voice donors’ and we need a range of UK accents. Find out how to donate your voice on the Speak:Unique website.

Donate money, or fundraise for us

Scientific experiments are, unfortunately, expensive. As scientists we don’t take shortcuts: experiments have to be repeated and ideas tested in multiple ways. Cutting-edge equipment can easily run into hundreds of thousands of pounds.

Most of our research is funded by government or charity research grants that our investigators apply for competitively, with only the most promising research being funded.

Our wonderful donors and fundraisers make a hugely important contribution by supplementing the funding received in research grants. Donations fund PhD students and 'seedcorn funding' for pilot projects to develop new ideas that may become larger research studies, as well as important equipment and chemicals for our labs.

Find out more about MND and spread the word

Follow us on Twitter or Facebook, come along to an open evening or attend a lecture. Find out more about MND and what we do, then tell all your friends!

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