News
News
Find out about what's been happening at the Centre.
MND-SMART - the participant's perspective
July 2020: Alan Gray, one of the first people to take part in MND-SMART, tells us about his experience of participating in the landmark clinical trial.
MND-SMART clinical trial update
July 2020: We are pleased to announce that we are preparing to restart recruitment to the MND-SMART clinical trial from our Edinburgh trial clinic.
Study proves reliability of videoconferencing for MND appointments
June 2020: Centre researchers have found that appointments via videoconference are as effective as face-to-face appointments, and that people with MND are keen to use videoconference for future consultations.
Summer Newsletter 2020
June 2020: Our latest newsletter is now available.
Clinical trial management team during lockdown
June 2020: MND-SMART Trial Manager, Rachel Dakin, and Trial Management Administrator, Jill Williamson, give us a brief update on what they've been busy with during lockdown.
SpeakUnique goes live to help people around the world.
June 2020: Today we’re delighted to announce the launch of our first spin-out company - SpeakUnique.
Riluzole research study published
May 2020: The study reviewed riluzole prescribing, uptake and treatment discontinuation in Scotland.
MND-SMART Trial recruitment - COVID-19 update
May 2020: As the UK government starts to ease lockdown measures we wanted to provide an update on the MND-SMART clinical trial.
Research continues on inherited forms of MND
April 2020: Centre researcher Jade Howard tells us about her research into family experiences of inherited forms of MND and how COVID-19 has been affecting her work.
Results published of audit of MND cognitive assessments.
April 2020: The findings of a study have been published this week auditing cognitive assessments in people with MND in Scotland.
MND clinical trial recruitment paused due to COVID-19
March 2020: In response to the rapidly evolving circumstances surrounding Coronavirus (COVID-19) we have, in accordance with guidance from our research sponsors (University of Edinburgh and NHS Lothian), taken the difficult decision to pause recruitment to MND-SMART.
First MND-SMART trial centre opens
March 2020: MND-SMART, the pioneering new MND clinical trial from the Euan MacDonald Centre has opened its first clinical trial centre in Edinburgh.
MND-SMART: landmark MND trial launches
January 2020: The Euan MacDonald Centre-led innovative clinical trial MND-SMART is now seeking people with MND from across the UK to test potential new treatments.
Winter newsletter 2019
Dec 2019: Our latest newsletter is now available.
Stem cell technology offers new insight into MND
Dec 2019: Euan MacDonald Centre researchers have published findings showing that a genetic change associated with MND makes glial cells, which normally support neurons, become damaging to them instead.
Experiences of the 2019 International Symposium
Dec 2019: Several Euan MacDonald Centre researchers recently attended the 30th MND Association International Symposium in Perth, Australia, to find out about the very latest in MND research and care advances.
Cognitive change in MND: what causes it, and why measure it?
Dec 2019: New research from Euan MacDonald Centre Investigators has revealed a new understanding of the causes of cognitive change in MND, and why it's important to measure it.
Our 2019 Fundraising Round-up
Dec 2019: We are extremely grateful to everyone who fundraised for us this year. Together, our fantastic fundraisers raised over £30,000 in aid of motor neurone disease research.
30 years of the Scottish National MND Register
Dec 2019: The Scottish National MND Register, which has become an invaluable resource for research and to monitor care across the country, was founded in 1989, the first national MND register in the world.
September research open evening success
Sept 2019: Visitors joined Centre researchers to learn more about MND projects underway
Aberdeen Cafe Med event a great success
Sept 2019: At a highly successful recent public event in Aberdeen, Euan MacDonald Centre members discussed "Motor Neurone Diseases: what's next?"
Funding boost for neurological conditions research at Anne Rowling Clinic
Sept 2019: J.K. Rowling has donated £15.3m to the Anne Rowling Regenerative Neurology Clinic at the University of Edinburgh.
Prestigious award for EMC researcher
Aug 2019: Congratulations to Dr Maria Stavrou who has been awarded a Medical Research Council Clinical Research Training Fellowship.
New review of MND mitochondria research published
Aug 2019: First review of MND laboratory research on interventions targeting mitochondria suggests positive effect on survival.
Golfers have a ball raising funds MND research
July 2019: The recent golf tournament 'The Ballater Charitable Chiels Charity Texas Scramble' was a great success.
A day in the life of Euan MacDonald Centre PhD student Rachel Kline
Jun 2019: Our PhD student Rachel Kline describes a typical day in the lab, with the highs and lows of researching MND in fruit flies.
£55,000 fundraised in memory of Robert
Jun 2019: Friends and family of Robert Ferguson Paulley have generously fundraised for the Euan MacDonald Centre to find new treatments and a cure for MND.
Welcome to new Principal Investigator Dr Chris Henstridge
Jun 2019: Congratulations to Dr Chris Henstridge, who has taken up a Lectureship position at the University of Dundee and become a Principal Investigator of the Euan MacDonald Centre.
Our 10th Centre Postgraduate Afternoon
Jun 2019: Last week we held our annual Euan MacDonald Centre Postgraduate Afternoon, when our doctors and scientists get together to discuss the work of our early-career researchers. We also presented the Hampton Awards, for people who go 'above and beyond'.
Experiences of the ENCALS 2019 MND conference
Jun 2019: The Euan MacDonald Centre recently funded three researchers from Edinburgh to attend the 'European Network to Cure ALS' (ENCALS) meeting. This annual conference attracts MND researchers from across Europe and beyond, and is an excellent opportunity to network with other researchers and showcase our work.
Centre member wins British neurology prize
May 2019: We’re delighted that Dr Arpan Mehta, has won the Charles Symonds Prize for best poster presentation at the Association of British Neurologists 2019 Annual Meeting.
Edinburgh Marathon Festival Fundraisers
May 2019: Almost 30 people took part in this weekend's running festival to raise awareness and funds for the Euan MacDonald Centre.
New research: a map of molecular brain changes during ageing
May 2019: Our researchers have generated a 'map' of how protein molecules change in the brain during normal ageing, which can be used as a benchmark to investigate neurodegeneration.
Arbikie distillery announces ongoing support for MND
April 2019: £1 per bottle for all sales of Arbikie Distillery's AK’s Gin will go to support MND research and support.
University students raise almost £3000 for MND research
Apr 2019: Eleri Connick, President of Edinburgh University Students Association (EUSA), presented a cheque to the Centre from their fundraising for MND research.
Edinburgh Science Festival MND Event
Apr 2019: We were delighted to be part of the Edinburgh Science Festival at an event hosted by MND Scotland.
Research open evening success
Apr 2019: Our recent Open Evening on the 10th April was a great success with around 60 people joining us on the night.
New research: Gastrostomy has become safer for people with MND
http://www.care-mnd.org.ukApr 2019: Analysis of the data from the CARE-MND platform has shown that gastrostomy is safer for people with MND than it was 30 years ago.
New MND incidence and prevalence study published
Mar 2019: The study used data from the CARE-MND platform to investigate how common MND is in Scotland.
My Name'5 Doddie Foundation donates to MND Research
Mar 2019: Euan MacDonald Centre researcher Professor Tom Gillingwater is among those whose work will receive a donation from the charity.
Perspectives on the International MND Symposium
Feb 2019: We asked our researchers to reflect on what they gained by attending the International Symposium on MND.
New MND funding awarded to Clinical Fellow
Feb 2019: Dr Liz Elliott has been awarded new funding to study genetic patterns in MND.
Fantastic Fundraisers
Dec 2018: We are extremely grateful to all the fantastic fundraisers who supported the Euan MacDonald Centre in 2018 and raised the amazing total of £130,000!
PhD student publication success
Dec 2018: Many congratulations to our Centre-funded students Hannah Shorrock and Chris Crockford, who can now add 'Dr' to their name!
A step towards understanding spinal cord repair
Dec 2018: Our researchers have identified that immune system cells are important in spinal cord repair in zebrafish.
New research insights in spinal muscular atrophy
Oct 2018: Recent research by a team of Euan MacDonald Centre investigators provides new insights into spinal muscular atrophy, the childhood-onset motor neurone disease.
Rugby star pledges new funds for drug screening research
Oct 2018: The My Name'5 Doddie Foundation has pledged £250K to the Euan MacDonald Centre for a drug screening programme.
MND affects thinking in up to 80 per cent of patients
Sep 2018: Our latest research suggests that four out of five people with MND are likely to experience changes in their brain function, as well as impaired movement.
As a matter of fat: Potential links between lipid droplets and MND
Jul 2018: Centre researcher Dr Giuseppa Pennetta has co-authored an essay presenting evidence that droplets of fat might have a beneficial effect in cells affected by MND.
Summer e-newsletter published
June 2018: Our Summer 2018 e-newsletter is now available.
Speak:Unique on the road: a Scottish island-hopping adventure!
June 2018: The Speak:Unique team has been on the road, recording voices in the Western Isles, Orkney and Shetland.
Welcome to our new website!
June 2018: We’re excited to launch our new website.
Postgraduate Afternoon 2018
May 2018: Seventy MND researchers from across Scotland gathered to discuss the latest science and research ideas.
Funding for research posts to search for MND treatments
Apr 2018: We announce funding for two new postdoctoral laboratory scientists who will work on screening for new drug leads for MND.
Research Open Evening: 12th April
Mar 2017:Meet researchers at our drop-in open evening hosted by the Anne Rowling Regenerative Neurology Clinic.
Synapse loss may underlie brain changes in MND
Dec 2017: New research findings give insight into the pathways that underlie changes in thinking and behaviour in MND.
Stem cell research reveals differences in cells from people with MND
Feb 2018: Euan MacDonald Centre researchers have published exciting new findings based on their research on stem cells.
Winter 2017 e-newsletter now available
Dec 2017: The latest edition of our e-newsletter is now available.
Thank you to our wonderful fundraisers of 2017!
Dec 2017: Sincere thanks to our wonderful fundraisers, who raised a huge amount for us in 2017.
Donald MacDonald CBE awarded honorary degree
Dec 2017: Our Centre's co-founder Donald MacDonald was awarded Doctor honoris causa by the University of Edinburgh.
Congratulations Hannah Shorrock – our newest PhD
Dec 2017: Congratulations to Dr Hannah Shorrock, a Euan MacDonald-Centre funded postgraduate student, who has been awarded her PhD.
Two amazing 2017 fundraising events with our founders & rugby friends
Dec 2017: A huge thank you to everyone who attended and/or donated to Just a Sports Quiz 2017 and the Arbikie Highland Estate Field of Dreams.
ECAS on the road: training MND healthcare professionals
Dec 2017: Professor Sharon Abrahams and Faith Hodgins are delivering training on the ‘Edinburgh Cognitive and Behavioural ALS Screen’ (ECAS) .
New insights into how motor neurons live and die in MND
Dec 2017: Euan MacDonald Centre scientists have published new studies that provide insights into the molecules and chemical pathways involved in neuron degeneration.